Symptoms - do you experience this?

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Symptoms - do you experience this?

Postby tandrle » Thu May 17, 2012 8:56 pm

I was diagnosed a litle over a year ago. I have been told low risk I do not pass out and am for the most part healthy (mild high blood pressure). The one thing I notice right now is when I get real tired (maybe I am watching a cartoon with my kid on sat AM or even rocking her to sleep at night) and I close my eyes if I start to drift off to sleep I will get a flutter in my chest just below the right pectoral muscle... seems like from deep inside. Do you all experience these ? I have had a holter monitor on for 24 hours and tried to mark the times for the doctors they say there was no arytmic event in the 24 hour period. This has started to become concering to me and makes me lie awake at night.

Do you experience these?
Should I be seaking second opinions?
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Re: Symptoms - do you experience this?

Postby Chas » Sun May 20, 2012 7:05 pm

I have sometimes noticed a fluttering sensation in my chest when resting and especially when waking up. It does not usually last for long and does not appear to affect my pulse rate. It has never been captured on an ecg or holter so I am not sure what causes it. All I can say is I have had it for years and it has never developed into anything serious.

Lets see if anyone else reports anything similar.
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Re: Symptoms - do you experience this?

Postby Linda S » Sun May 20, 2012 8:09 pm

Hi I too have been suffering from what I would call palpitations. When I went to have my ICD checked last December I told them about my concerns. When they looked at the printout they saw that I had had at least 7 consecutive nights of my heart beating at 85 bpm when I was asleep. My cardiologist wanted me to have an ECG and blood tests to rule out any other reasons but it was ok. I then had a 24 hour monitor on and it was found that I had bouts of 'inappropriate sinus tachycardia'. Very often my heart was beating at well over 100 bpm. My cardiologist recommended that I take a beta blocker called
bisoprolol, 2.5mg for a month and then doubled to 5 mg. My heart has now slowed down but I have a few side effects from the beta blockers.
Linda S
Concerned
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Re: Symptoms - do you experience this?

Postby Isa » Mon May 21, 2012 2:10 pm

I'm a bit surprised Linda, aren't Beta blockers the main medicine we're supposed to avoid with BrS??
I also get fluttering & skipping feelings at times, mostly when I'm overtired (from lack of sleep) or stressed. Eating certain lollies seems to brings them on too! Had it very frequently a few yrs ago but not so often now, can't explain why except that BrS worries aren't taking over every thought on my mind these days...I had a night in emergency at the hospital shortly after my diagnosis due to a panic attack (they worried it was a potential episode of BrS) & had lots happening all night long but the nurses didn't see anything worrying from their end. I've asked my EP cardiologist about it as frankly unsettling & disagreable and his response was that everyone gets these, it is not symptoms of BrS as it would be too sudden to actually have time to feel it...Still interesting if this is something we all consistently seem to experience...

Cheers,
Isa
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Re: Symptoms - do you experience this?

Postby Linda S » Mon May 21, 2012 5:49 pm

Hi Isa
You could be right but I haven't seen biosoprolol on any lists. It can be so complicated can't it? I just needed to have something to control my heart rate and I do have faith in my EP/cardiologist.It's unfortunate about the side effects I have but they're not connected to the heart.
Linda S
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Re: Symptoms - do you experience this?

Postby penfold77 » Mon Oct 28, 2013 8:38 pm

Hi
I'm Jane and my partner has recently been in and out of hospital with suspected Brugada, he is 37. He has had symptoms for years but all ecgs, blood tests have always been clear so he has always been discharged as being fine. On a recent submission to hospital after I had to phone an ambulance to him it was found by a cardiologist that something wasn't right with his ecg. He is now waiting for an appointment to see a specialist at Wythenshawe, Dr Fox. I have witnessed his many symptoms and was wondering if any of you have developed a twitch, mainly in the right arm? He only started with this twitch a few weeks ago when he was admitted to hospital after he started with chest pains and difficulty breathing at home whist watching TV. He gets regular fluttering in his chest, what he explains as shock like feelings that last for a split second but take his breath away and sometimes cause him to pass out for a few seconds which is isn't aware of at the time. Since being admitted to hospital twice over the last three weeks his symptoms have been more regular and I am worried as waiting for an appointment could take weeks. Has anyone else had to wait as an outpatient to be seen for a definite diagnosis and treatment? Is there anything I can do to help him when he is experiencing these attacks?

He has also been put on bisoprolol Linda and since taking this has started experiencing a burning sensation that starts in the middle of his chest and travels down both arms, do you experience anything like this? I am going to speak to his doctor about this just to be on the safe side.

He has a family history of heart attack and unexplained sudden death on his father's side, all between 30 and 50 years of age. His dad is the only one of his siblings that is still with us and was told years ago that he has an arrhythmia.
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Re: Symptoms - do you experience this?

Postby Linda S » Mon Oct 28, 2013 9:26 pm

Hi Jane
I also attend Wythenshawe Hospital and it was there that I was diagnosed in 2007 with Brugada by having the flecainide test. I think they use ajmaline now. I had my ICD implanted in April 2009 but my consultant Dr Bennett has recently retired. Dr Fox has a good reputation so hopefully he will sort your partner out. You may not have to wait too long. I can't say I have similar symptoms to him although I am taking bisoprolol now. It's very difficult with Brugada because it is still the unknown and they say there aren't any real symptoms although they advise you to avoid getting overheated. I have a fast heart rate. I also have an appointment at St Mary's for genetic testing. I hope your partner is sorted out soon. If I can help in any way, let me know.
Linda S
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