Symptoms - do you experience this?

[tandrle]

I was diagnosed a litle over a year ago. I have been told low risk I do not pass out and am for the most part healthy (mild high blood pressure). The one thing I notice right now is when I get real tired (maybe I am watching a cartoon with my kid on sat AM or even rocking her to sleep at night) and I close my eyes if I start to drift off to sleep I will get a flutter in my chest just below the right pectoral muscle... seems like from deep inside. Do you all experience these ? I have had a holter monitor on for 24 hours and tried to mark the times for the doctors they say there was no arytmic event in the 24 hour period. This has started to become concering to me and makes me lie awake at night.

Do you experience these?
Should I be seaking second opinions?

[Chas]

I have sometimes noticed a fluttering sensation in my chest when resting and especially when waking up. It does not usually last for long and does not appear to affect my pulse rate. It has never been captured on an ecg or holter so I am not sure what causes it. All I can say is I have had it for years and it has never developed into anything serious.

Lets see if anyone else reports anything similar.

[Linda S]

Hi I too have been suffering from what I would call palpitations. When I went to have my ICD checked last December I told them about my concerns. When they looked at the printout they saw that I had had at least 7 consecutive nights of my heart beating at 85 bpm when I was asleep. My cardiologist wanted me to have an ECG and blood tests to rule out any other reasons but it was ok. I then had a 24 hour monitor on and it was found that I had bouts of 'inappropriate sinus tachycardia'. Very often my heart was beating at well over 100 bpm. My cardiologist recommended that I take a beta blocker called
bisoprolol, 2.5mg for a month and then doubled to 5 mg. My heart has now slowed down but I have a few side effects from the beta blockers.
Linda S

[Isa]

I'm a bit surprised Linda, aren't Beta blockers the main medicine we're supposed to avoid with BrS??
I also get fluttering & skipping feelings at times, mostly when I'm overtired (from lack of sleep) or stressed. Eating certain lollies seems to brings them on too! Had it very frequently a few yrs ago but not so often now, can't explain why except that BrS worries aren't taking over every thought on my mind these days...I had a night in emergency at the hospital shortly after my diagnosis due to a panic attack (they worried it was a potential episode of BrS) & had lots happening all night long but the nurses didn't see anything worrying from their end. I've asked my EP cardiologist about it as frankly unsettling & disagreable and his response was that everyone gets these, it is not symptoms of BrS as it would be too sudden to actually have time to feel it...Still interesting if this is something we all consistently seem to experience...

Cheers,
Isa

[Linda S]

Hi Isa
You could be right but I haven't seen biosoprolol on any lists. It can be so complicated can't it? I just needed to have something to control my heart rate and I do have faith in my EP/cardiologist.It's unfortunate about the side effects I have but they're not connected to the heart.
Linda S